Monday, September 20, 2010
28 days. And counting. That will be October 18, the day Joseph turns eight. I really want that day to get here. I am not rational about it. I know it makes no sense. I know everything about him is different. It doesn't seem to matter. Hurry up so I can get rid of this stray thought in the back of my head. Just turn eight.
Two years ago my nephew did not turn eight. At the age of seven, Ben died of a seizure. I still can't believe he isn't here. Ben was my nephew by marriage, Joseph's cousin by blood. Since I have been divorced, I haven't seen any of the in-laws. This has been more than five years. It didn't make it any easier.
When it happened, I immediately researched SUDEP (Sudden Unexpected Death in Epilepsy). And then I re-read the book my neurologist have given me. It was not in the book. No one told me this was something to worry about. At Joseph's next appointment, I said, "This is not in the book."
It turns out that the chances of this happening are less than the chances of being struck by lightening. Ben had a more difficult time with seizures than Joseph. His medical care was different and his presentation was different. Joseph has had a relatively easy time getting controlled. This is all very comforting, on a conscious level.
On the subconscious level, I just want him to turn eight now.
His seizures are not something that limit him. He hasn't had one in 2 1/2 years. It is in the back of my mind on a regular basis. Every morning and night he takes a pill. I have to tell the parents of any new friends that he plays with or a new babysitter.
And sometimes there are things...things like the little tremors that go along with it. In kindergarten he had trouble tying his shoes. He knew how, but his hands shake more in the mornings and he was slow at it. His teacher told him that after Christmas, he couldn't get help anymore. He would have to do it himself. He panicked. A couple of weeks ago, he was taking pictures with a camera. He took forever to aim, and I said, "Hurry up! What is taking you so long!"
He said, "Well, it's hard to aim when your hands are shaking all of the time!"
Ugh. I suck.
He is a brave kid. He was brave at age two in the hospital. He is brave getting blood drawn. He is confident and funny and sweet.
Now just hurry up and turn eight.